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Leslie Burke

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Something is going wrong

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» What's New?
» Home
» In the beginning
» The withholding of artificial nutrition and hydration
» What the Papers said before the judgment
» The Judgment
» What the Papers said after the Judgment
» The Government Intervention
» What the Papers said before the Appeal
» The Appeal
» What the Papers said during the Appeal
» The Appeal Judgment
» What the Papers said after the Appeal Judgment
» Before the ECtHR Appeal
» The ECtHR Reject Appeal
» What the Papers said after the ECtHR Reject Appeal
» The Continuing Debate
» External Web Site Links
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Picture of Postman 40

1983 I was asked by my employers at the time (the Post Office, I was a postman) to have a medical. I was diagnosed with Cerebellar Ataxia.

What! Never heard of it you may say, well neither had I.

I was not

  • told anything about the condition
  • told what the likely prognosis was going to be
  • told how best to cope with the condition
  • how to live with the condition
  • given any counselling
  • given the name of any organisation that could help
  • told if anyone else in the UK had the same condition
  • told nothing zilch

    The only impression I was given was that I would probably not see my 40th birthday.

    Then I got lucky. My Auntie went to the hairdressers, picked up a magazine and read all about this 'medical condition.'

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    Background

    » In the beginning
    » Something is going wrong
    » What I decided to do
    » Background on this case
    » BMA policy on Artificial Hydration and Nutrition
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    External Links

    » ATAXIA UK We fight Friedreich's ataxia and other cerebellar ataxias
    » NHS gears up for human rights cases
     
    © 2004 Les Burke